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Registry for High Risk Colorectal Cancer Patients

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The Most Important Registry of your Life

The Washington University Inherited Colon Cancer Registry has expanded its efforts to enroll patients and family members with the inherited syndrome. The registry offers educational events, schedules regular screenings and makes it easier to collect research samples.

More than just a List of Names

“The registry is a great resource for helping us inform patients should new treatments or medications come along”, according to Ira Kodner, MD, the Solon and Bettie Gershman Chair in Colon and Rectal Surgery. He believes the registry is poised to provide a great service to patients with familial adenomatous polyposis (FAP) and hereditary nonpolyposis colon cancer (HNPCC). Patients and their families are able to share experiences with others through the registry.

Lifesaving Surgery and Vigilant Screening

Patients with classic FAP can develop benign polyps as early as their teenage years. If the colon is not removed, these patients will inevitably develop colorectal cancer. For patients with HNPCC, vigilant screening is essential to avoid occurrence of aggressive colon cancer, endometrial cancer (in women) and other malignancies.

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Surgery/General Surgery - Colon & Rectal
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Copyright 2013 Washington University School of Medicine
Copyright 2013 Washington University School of Medicine